My perspective on living with Young Onset Parkinson’s:
At first (diagnosis) you know very little.
Then you can’t help but have a peak (online) and then the reality of the longevity of it (PD) really hits you.
For a while, it was really tough and as the symptoms gradually progressed (over 4 years following diagnosis) I wasn’t really prepared (and new symptoms). Who would be?
Eventuality, you find your feet agan, but it’s on new ground which is seemingly very unsteady and not at all the path you thought you would go down before you knew you had Parkinson’s.
You will naturally find ways to adapt and work around it, as best you possibly can.
You carry on – it’s a lifelong chronic disease -so it opens up your perspective on what’s ahead, in a way. You are forced to consider, and reconsider, what you had set out to do in life. Looking ahead, you ultimately realise that with time you will be limited well before you reach your senior years – in terms of mobility and what you can realistically achieve day to day.
I have little control over what happens to me in my life – but how I react is key and it is this response which will have the biggest impact and not, as in this case, Parkinson’s.
Everyone in life has a struggle or problem to contend with. This is simply mine.
The reasons for sharing my life with Parkinson’s online was so that I would hopefully do my bit towards dispelling the stigma around Parkinson’s. It was also to highlight the fact that Parkinson’s affects younger people too, not just older people, and that how (statistically) out of every 20 diagnosed with Parkinson’s – only 1 in 20 (possibly even less) are under the age of 40.
I am here to share, inform and raise awareness of what Parkinson’s is but also how it impacts daily life . This is so that others diagnosed, now or in the future, will have the information there to see and hopefully feel like they are not alone in this lifelong battle of body and mind.